Episode 23

full
Published on:

19th Mar 2024

Resilience After Brain Injury

Resilience After Brain Injury

In this episode, Marylayo talks with guest, Greg Ward. Greg shares his personal story of recovery following a brain haemorrhage that occurred when he was just 14 years old; and reflects on how after many years he's only now more comfortable discussing his challenges openly.

Discussion points

  • (00:00:01) MaryLayo and Greg Ward on Brain Injury Recovery
  • (00:08:17) Journey from Zero to Academic Achievement
  • (00:17:13) Overcoming Trauma with Support and Work
  • (00:19:47) Career Reflections After 50
  • (00:21:44) Reflective Shifts due to COVID
  • (00:23:41) Advice for Similar Challenges
  • (00:28:46) Spiritual Wellness Tip

Take a moment to delve into what may be 'beyond the smile' - listen in to the conversation.

Marylayo's spiritual wellbeing tip: Meditate on the bible scripture: Joshua 1:9.

For help in dealing with mental health related matters, please seek specialist advice and support if needed.

Transcript

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MaryLayo: Welcome to beyond the Smile with me,

MaryLayo, a podcast that discusses mental

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health and spiritual wellbeing.

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If you like what you hear, please do remember

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to follow and share.

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But before we jump in, there may be episodes

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that are particularly sensitive for some

listeners.

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And if that applies, then I hope you'll join

me whenever you feel ready and able.

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In today's episode, I'm talking to guest Greg

Ward about his journey recovering from a brain

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injury.

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Greg's recovery started as a child, so I asked

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him to talk through how it first began.

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MaryLayo: Let's join in the conversation.

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Can you, like, just talk me through what

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happened?

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Greg: Yeah. When I was alive in 14, so it was

Christmas or late December,:

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brain hemorrhage.

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It was a berry aneurysm.

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So I can remember in terms of what it was.

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I can remember being at school.

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I can remember going downstairs with a friend

of mine, Lee.

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And as I was going down towards what was

probably the second level at school, I

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remember being completely off balance and just

starting to be sick out of nowhere.

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And I can remember him and what I'm assuming

was a teacher sort of catching me from there.

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And I woke up on Christmas Day in hospital

after having the brain surgery.

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MaryLayo: Okay. Once you, I guess, woke up

from that surgery, what do you remember in

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terms of your recovery process?

Because that's a big, major life event.

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And then 1 minute you're at school, and then

as a teenager, you're waking up in hospital.

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So tell me what you remember about the

recovery process from there.

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Greg: Yeah, it was difficult because the

consequence of it, obviously was significantly

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painful in terms of the surgery itself.

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Obviously you've had a lot of, without being

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gory, a lot of skull removed and elements of

brain and what have you.

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The consequence?

The immediate consequence of that is that I'd

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lost a lot of my eyesight, a lot of memory.

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It caused, unfortunately, a whole decade of

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epilepsy.

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As a consequence of us, things were going

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back.

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But one of the most severe things is that I

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struggled to speak.

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And I just remember some of the basics of

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getting Christmas cards, for example, or get

well cards, but not being able to read it.

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So I realized that I didn't know how to read

or a lot of the time was even just to speak

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was difficult.

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I remember the recovery.

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I could remember lying in bed in the

children's ward.

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I could remember the surgeon, Mr. Smith, who I

then subsequently went to see with my wife a

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few years later.

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I really felt, I mean, he'd saved my life, so

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there's no doubt in that is that what they

came to me is that he would come across with a

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watch, and he would point at me at the point

at.

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And say, can you tell me what that is?

And for a while, I couldn't say watch.

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But once at the point when I could say watch,

he would then come and say, well, what's that?

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And I would say, I wouldn't know then.

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And then I had to work out whether it was the

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strap and then a buckle.

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And then he would say, what does the watch

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consist of?

So I then had to think about basically the

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numbers, the whole concentrate, be able to

think of the words.

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So the whole thing, he was asking me to do

that in order for me to start talking.

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So it was in the third year at school, so I

missed the next five or six months where all I

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was doing was learning to read and write,

learning to speak, speech therapist, et

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cetera, and going through those things in

order to just get back to some kind of

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normality.

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And I went to school in July, so I went to

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July properly for about the past.

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For the last half a dozen weeks or so in the

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remainder of that year, just to get back to

the normality of doing that.

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And then when I went back to school in

September, started doing GCSEs, which was.

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So we were actually the first year to do

GCSEs.

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I know it seems like 1000 years ago, but 1988,

and took my GCSEs and passed them two years

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later.

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So that kind of journey, those are the sort of

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specifics, if you like.

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MaryLayo: Even hearing what you were saying

and how you were describing it, and it's like

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you went through, you had to almost start at

the very basics to what you had known and then

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get to a point where you even resumed back at

school with the same classmates and then get

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back into that school system.

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That education system.

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Greg: Yeah. And it's difficult because when

you're going to school, and I was a very

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bright kid, so I was a very bright student.

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And so when you're going back to school, and

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then suddenly I can think of little things,

like, so if you're thinking about when you're

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in class and know, the teacher would go round

the class and know, read certain pages, you

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know what I mean?

I can remember Mr. Gorman, our history

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teacher, then saying, all right, who's going

to read it?

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And then the people are shouting, oh, get

Wardy Torah, get wardy to do it.

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So then he'd say, right, ok, you read this

passage, if I can describe it to you.

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So if I pick up what I'm sitting next to me

here.

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So on this piece of paper here, as I look,

actually, what I can see is the letter s,

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because everything to the right of me is I'm

blind to the right hand side.

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So I have a technique about how I sort of

consume those words now, but I didn't when I

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was 15, so I would go through the words really

slowly, as well as the fact that I also

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wouldn't recognize some of them.

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So I used to say a lot of spoonerism, so words

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where I would assume this is what the word.

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And I would just say the wrong words.

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And because it wasn't in a coordinated

sentence, all sorts of different words would

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be coming out to the hilarity of the class.

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And despite that, I had very close friends,

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you know what I mean?

But it's the way.

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It's almost a tough love, if you like, about

how to do it.

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But the reality is, and this sounds od.

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But I realized at the very early stage that I

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was just lucky to be alive, really.

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So you've just got to be somewhat

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philosophical about it to say you're going to

take some stick here.

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But, yes, I'd much rather reading something

out in school incorrectly than actually having

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an epileptic fit.

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So it's a lesser of two evils.

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So, yeah, school was all right, but at 16, I

left that school and went to a technical

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college for two reasons, because I didn't know

anybody at a technical college, and that was

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better.

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So they didn't know.

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And it was the first experience that I had

where I didn't want people to know that past

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history.

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So I wanted to go there and I wanted to do.

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And I needed to do a course which was

relevant.

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I couldn't do the a levels because reading was

difficult.

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So I did a BTEC course and then passed it with

seven distinctions as student of the year.

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So that was where.

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That was it.

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And from then on in, everything has been about

being the best of first of.

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You know what I mean?

It's all that.

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I'm competitive by nature, but it drives me to

do and exceed because I don't know, you have

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that feeling.

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I don't want people to think about things with

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either a sympathetic eye or.

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Well, I just want just to exceed expectation,

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exceed my own expectation.

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MaryLayo: I mean, you've said a lot there,

even the fact that you were at a place at some

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point where you couldn't read, you couldn't

speak.

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And then it sounds like to me, in a very short

period of time, you were able to sit exams.

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You're in a classroom with your peers.

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It's not like you took time out.

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So I'm even baffled how you managed to get

through that.

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And then you try to reset things by going to a

technical college.

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But it sounds like you were able to almost

like hide that background and move in a way

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that you actually exceeded general

expectations.

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Like to come up with, what, seven

distinctions.

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That sounds amazing.

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So I guess I'm trying to think of how in a

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short period of time, I know you mentioned

about you avoided doing the A levels because

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of the reading, but how in a short period of

time you got from A to Z. Yeah.

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Greg: Well, there are some factors.

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In fairness, I also took an a level.

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I did an a level at night school.

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I did politics at night school, as well as

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the.

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MaryLayo: While you were doing the Btech.

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Greg: Yeah.

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MaryLayo: Okay.

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Greg: One of the things, yeah, I'm quite self

driven.

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I mean, there are circumstances,

unfortunately, I also lost my father at 17 as

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well.

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He passed away, unfortunately, when he was

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only 41.

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And those things that also made me very driven

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in a circumstance that if you tried to put it

in the thoughts of my mother, who had the

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difficulty of what had happened to me, and

then obviously then losing her husband as

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well.

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And so you're then in a situation where there

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was myself, my younger sister and my mom.

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So you're kind of very driven to be successful

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or to just do things to a higher level.

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I don't know.

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It's a kind of feeling that time is very

precious and therefore you want to.

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Even now I can't sort of say almost like, sit

still.

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I have to do something.

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I have to create something or write or paint

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or whatever it is just stuff.

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And that's like that.

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So I felt like it's hard to say now about

where I am and where I was then.

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Perhaps it's a reality of thinking that what I

wanted to do when I was young was just to be a

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cricketer and that was removed because of loss

of eyesight.

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And yet I then still, I just started playing

again when I was 18 because I just thought,

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why not?

I couldn't think of reasons that you should be

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denied to do things rather than feel sorry for

myself and think, well, that's just bad.

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Actually, everybody has to deal with different

things at different points.

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So actually there isn't an excuse not to try

and be excellent.

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That's just a motivation, I guess.

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MaryLayo: Yeah. And to me it sounds like it's

a very unusual motivation, if I'm being

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honest, Greg, because when you're talking

about how your classmates, they'll be like,

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I'll get wardy to read this and that to their

amusement.

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That would know.

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To the general Joe blogs that would knock them

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know.

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Greg: What you'd also have to remember is that

these are children whose friend has gone

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through a traumatic piece.

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Whilst I was in hospital at school, they had

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masses for me.

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I went to a catholic school, so we had masses

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and these kids had the upset that they

suffered, so they're entitled to take their

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bit back.

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It's just fun.

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If I asked them to stop, then they would stop.

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So it's like, you just need to be slightly

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reflective that people have gone through quite

a very difficult and unusual thing where they

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committed their faith into me getting better.

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And I did.

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I don't begrudge on that.

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I just remember it because it makes you feel

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very awkward.

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MaryLayo: Yeah, sure.

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And I guess the reason why I was teasing it

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out is because it's almost like.

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I don't know, I'm getting the sense that

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things aren't sticking to you, basically,

whether you get a knockback because you can't

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do cricket, which is something you loved, but

it didn't hold you back and you learned that

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very early.

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So I'm getting the sense that even though

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there's an environment that for many people,

it would cause them to withdraw or to be

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negatively impacted, you didn't allow that to

restrict you.

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You didn't allow that to limit you or hold you

back or affect you mentally, psychologically.

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And you've managed to pave a way forward quite

naturally.

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Greg: Well, there's an element of denial, I

think, in what it is, is that what you're sort

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of doing is almost.

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Or what I did was to try and do it as if

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that's in the past.

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That's gone.

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It's not an epiphany.

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But I went to lords with the handicapped

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children's pilgrimage trust, I think, when I

was 16.

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And I didn't want to go in the first place.

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I didn't want to go.

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I was offered a chance to go and I just

didn't.

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That wasn't the same people that I was with.

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And I went and they realized, obviously,

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actually, I was just a 16 year old lad who was

not in a particularly difficult way.

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What I experienced was, is that I sat and met

with a dozen similar aged people, youngsters

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with various different disabilities, some of

which with terminal illnesses.

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And it just made me realize how fortunate I

was.

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And in actual fact, the experience itself was

really positive.

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It was really lovely.

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I remember the three boys, all in wheelchairs.

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I said, well, are we going to play football,

then?

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And so what we did is we got a balloon.

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One of the guys just stayed in his wheelchair,

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and the other two, and we had a where you.

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Where you just.

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All you could do was header it to try and

score and what have you between the two of us.

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And it was really nice.

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It was a really nice thing doing that.

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When I came home, I stepped out of that, out

of that environment and then backed into a

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normal environment and was never sort of

tempted to or felt like I wanted to do

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anything more there.

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What I felt was that I'd really valued from

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that experience and appreciated that.

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Actually, I'm in a much greater position than

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other people.

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So I'm not going to say that was a defining,

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motivating piece, but actually it did give me

an appreciation of something different when I

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was 16.

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And then, as I mentioned about my father,

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again, it's a thing where after having that

surgery and you see those experiences, you

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just grow up very quickly.

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And then it's just a question of saying, well,

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okay, well, you're going to have to do

something about it.

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The denial bit, SARs are saying, is that

actually I'm presenting out a piece of saying,

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actually, I don't have any sort of issues or

problems or challenges or what have you, but

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that's just not true.

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And I made a number of assumptions that in

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terms of where my career was going to go was

based on the fact that actually nobody was

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going to feel sympathy for me.

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No employer was going to recognize the fact

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that actually, he's a really intelligent guy.

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We'll just take him on.

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I just didn't even think the world existed

like that.

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That doesn't mean I'm convinced that it does

now, but I'm just saying that I felt like,

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right, I'm going to have to go into a job

where I'm not reading, so I'm going to have to

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do something where I'm just articulate.

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Well, a natural thing to do that is in sales.

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So I sort of fell into a career that I'm very

good at, but that was, I don't know quite

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which way to turn it around is to say, well,

whether it's made me to be good at something

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or whether I've forced myself to be good at

something a little similar to doing my exams,

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just to make sure that that's the area I have

to work in, so therefore I have to be really

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good at it.

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So it's an interesting thing and it's only

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when I'm mature, mature, when I am more

mature, more mature, that I can begin to

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reflect and saying, actually, there are people

who are there to support and help and what

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have you, and then you think differently and

therefore I can make an advantage of that

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later in life.

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MaryLayo: So I guess you are an extraordinary

case, Greg, because I'm struggling with how to

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get out.

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Like, okay, so you went through this and this

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and you struggled with this, but then you

managed to overcome this.

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And I'm not getting that.

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And it's not a bad thing.

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It's just a unique thing to me.

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And I'm not saying, oh, Greg, you're my hero.

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But I think it is really extraordinary in

terms of how you think, and I think it's

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innate within you, almost like natural.

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And I think you just matured very quickly and

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you almost didn't look back and allow yourself

to be wallowed in those past.

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What many would say is a traumatic event.

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Greg: Yeah, all I would say is that people

sort of are impacted by things differently.

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And what I think you're trying to draw on is

to say, well, where were the things that

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really were difficult and what was the sea

change in your experience?

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I know the moment where that takes place

because it's actually the point at which I

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realized that actually there were people who

were sympathetic and there were people in

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that.

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And actually through support, through social

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services, I actually realized you can get

loads of help and you can do that.

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And that was a point where I was helpful to

go.

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It's not a know to say, actually, I need

assistance in terms of travel and got really

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great help from the DWP through access to

work.

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It's not a weakness to say, actually, my

reading is a lot slower than somebody else's

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because that's the reality.

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But then I realize you can get audio pieces

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that help you through work and what have you.

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Funny enough, it's only really since where I'm

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working now over the past three years, where I

feel much more comfortable to say that and

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express that.

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And I feel that as an employer, that would

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say, well, let's help with that, let's

accommodate that.

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And it is really refreshing that I can feel

comfortable in that situation.

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And therefore I can sort of challenge that

question of saying, well, as a disabled

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person, would I recognize myself in that?

I would have to say that in order to drive

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myself forward for 20 od years, I would never

say that.

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I wouldn't recognize that at all.

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Whereas actually that is a reality.

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It has actually shaped the way in which I am,

and therefore it'd be something that I should

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be really comfortable in having in the

conversation, I guess.

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MaryLayo: So you alluded to how it's only more

recently, like the last few years, that you've

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become more comfortable in terms of maybe

sharing or disclosing, I guess, limitations.

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So what do you think are the factors?

Is it because of the culture?

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What do you think has helped to facilitate

that?

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Greg: If anything, COVID, I think, is one of

the big impacts.

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So COVID is one of those things where actually

you had time to reflect.

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You are looking for an employer that actually

delivers and illustrates real care.

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And perhaps for a very long time, I wasn't

that interested in that at all, and it wasn't

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necessary or it wasn't a priority.

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But particularly as you're past 50, you kind

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of begin to think about your career slightly

differently and the value of the businesses.

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So you're then thinking, well, I'd rather work

for an organization where I think where the

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way it operates or the way we think about

people is a priority.

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I mean, my whole career is in sales, so it's

all about the numbers that you're generating,

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et cetera.

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But that isn't it.

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It's more about the way we interact with

people, et cetera.

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And we can all sort of sit and take and be

critical of who our employers.

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I get that, but that makes me feel different.

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I know that the business has made a

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significant effort in terms of EDI and whether

it's success or otherwise, is that at least I

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don't really feel like it's a token gesture.

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I think it's trying something, and therefore

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that's allowed me to just perhaps just relax a

little and be a little bit more reflective.

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MaryLayo: So when you mentioned about how

COVID, I guess, helped to make you more

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reflective in terms of the kind of

organization where you wanted to be, would you

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say that?

And you did mention this about EDi.

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Do you think how, because there's a lot more

of a spotlight when it comes to equality,

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diversity and inclusion, do you think that

that may have played a part in the fact that

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you can now start getting your mind to look in

that direction when it comes to organizations,

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for example, being more inclusive, diverse and

open to it allows me.

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Greg: To ask a lot more questions of myself as

well as others in terms of thinking about what

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that business is in what it's talking about

and where COVID helps in the sense that

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actually you spend a long time with family,

which is the really important thing to me.

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And then you begin to think, well, who are we?

As people?

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Who are we?

And as you're then going back into employment,

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that you're thinking, what is it that really

matters?

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And therefore, when you're looking at that

externally, you can also then think internally

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about, well, what does that mean in terms of

who I work with, how I treat people, how I

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talk to people, to try and understand and

think about people emotionally.

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It's become a much, much more important point.

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And therefore, expressing to people who I am,

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what my background is, or where I've come

from.

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And those things are the challenges is that

you can then empathize, you know what I mean?

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You can begin to understand about other

people's issues because you're reflecting it

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in your own, and therefore, not to hide that,

but actually, I think it gives people an

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element of comfort in thinking, actually, this

guy's just telling me exactly what he's like.

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You can't read this stuff quickly.

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So it's like all.

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Whatever it is, those just different aspects.

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MaryLayo: If there is someone who, let's just

say they're going through something that's a

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similar challenge, and I acknowledge that

everyone's different, but what would you say

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that has helped you to them?

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Greg: My answer to that, really, is to reflect

on things which have been very unfortunate,

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which I can at least reflect on, whether it's

loss of family and things like that, et

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cetera.

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It is very difficult to look at that in a

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positive.

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But what I would genuinely say is that you

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don't realize that actually, on a day by day

basis, you are redirected into different

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experiences which are positive.

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I'd never spoken to you, I don't think, Mary,

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before being at work, we've happened to have a

conversation because you were doing this,

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because I saw you were doing it on LinkedIn

and what have you, and then just by doing

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this, you know what I mean?

I never thought I would ever even have.

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I've never had this conversation with

somebody.

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And to do that, I think, is a good thing.

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It's cathartic.

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So where the opportunity for people to talk or

speak or what have you is that it is really

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difficult to think about.

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I look at sports people, for example, who

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might come to the end of their career and then

think, what do I do now?

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You've got people who are multimillionaires,

but they just don't know what to do with

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themselves.

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And it's really hard about thinking.

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It's just a new journey that you're taking.

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And I know there are cliches.

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It's shut one door and open another and it's a

new chapter and all that thing.

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But that is actually, it's real.

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I think about all different things where just

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as you get an older and then somebody said,

oh, well, you need to reduce your cholesterol,

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et cetera.

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Okay, so if that's the case, then, well, I'll

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go on a walk every day.

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So actually you now have a different

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experience about what you're doing and you get

different visibility of what's around you and

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what have you.

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So there isn't a way of saying something

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simple to say, oh, well, it'll be fine.

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No, that's not it.

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It'll be the same.

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But what you want to do is, what does it mean

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from a different experience if I give you a

practical and funny, well, just experience.

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I've never read a book, right.

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So I've never read a book that enjoyed it.

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I've read Lord of the Rings mind and that took

about a year to read it.

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But you had joined Giorg to get through.

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I don't sit and read because it's not a good

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experience.

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I don't do it.

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So I challenged myself to do two things.

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One was to write a book, because I thought,

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well, if that's the case, then I'll write one.

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So I wrote a novel and I was so pleased that I

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did it, I took it to a local library.

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And so they said, right, we'll have a local

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author in to do this.

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So I took my book, Lexium nine Sci-Fi book.

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I got copies, I got it all printed and what

have you.

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It's on Amazon and all of those things.

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I gave it to people to read.

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It's self published, so I'd give it to the.

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So anyway, I went to the library, I sat there,

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there were 17 people sitting around, they'd

all read the book and they started going

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round, round the room, universally, every

single individual hated it, right?

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Really thought it was terrible.

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And then a guy right at the top said to us, I

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said, I've read it twice.

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And I said, oh, that's great.

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He said, because I didn't understand it first

time, and I now really don't understand it.

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And I went away from that really quite

pleased, because I thought, well, 17 people

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have read it, so at least I know that that's.

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That experience was a good experience.

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And then out of nowhere I found audiobooks and

I've consumed them from umpteen, different

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authors and stuff like that.

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And reading and listening to everything and

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listening to everything every day and stuff

like that.

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All I would say is that for 35 years I

thought, well, I don't want to get a book.

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I'm not interested in that particular author

or what have you.

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Actually, these things just take you into a

different path.

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And it might be just because I just always see

things from a glass half full that things are

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always positive, and that's that.

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That might not be helpful for some, but from a

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practical point of view, I'll just say one

thing is ask.

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It surprised me when I investigated in terms

of things like access to work, people helping

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to get to and from work and things like that.

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I didn't know that they existed.

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Just ask.

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You'll be surprised about what support there

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is there.

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And finally, I would say, talk to other people

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because you're surprised is when other people

begin to tell you their story, you realize

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that neither you're not alone.

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And also that actually gives you a greater

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::

position to be appreciative of other people.

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Actually, you're in a pretty good spot.

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And you might not know it, but actually you're

all right.

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MaryLayo: Thanks so much for coming along and

sharing and giving me your time.

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Greg: Yeah, you're very welcome.

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MaryLayo: Here's a spiritual wellness tip for

you.

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It's Joshua, chapter one, verse nine.

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And it reads, this is my command.

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Be strong and courageous.

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Do not be afraid or discouraged.

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For the Lord your God is with you wherever you

go.

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::

MaryLayo: Thanks for listening.

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Do follow and join me again next time on

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::

beyond the smile with MaryLayo.

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About the Podcast

Beyond the Smile
with MaryLayo
Beyond the Smile - with MaryLayo is about issues and life events that negatively affect our mental health and spiritual wellbeing (biblical perspective). Various topics will be discussed, alongside guests, to help listeners understand more about their challenges and learn how they can live a more free and radiant life.

About your host

Profile picture for MaryLayo Talks

MaryLayo Talks

MaryLayo is a podcaster, with a strong interest in mental wellbeing, social justice and issues which affect the lives of vulnerable individuals and communities. She has extensive experience in research programme management, and like research, sees her podcast as a way – through the help of guests, to find out relevant, useful information to share, inform and help others (but with the fun-factor thrown in).

MaryLayo is keen for the messages of her Christian faith to be relatable to the everyday person and volunteers for several charities. Her hobbies include voice-overs, singing and travelling.